Wednesday, October 28, 2009

More news on Sean

Sean came home from the hospital Monday evening after having had tons of grueling tests and lots of fluids pumped into him from an IV. Poor kid. He got this blanket and bear from the hospital and he loves them with all of his heart. (It is part of project Linus.) He's feeling a little better, but does not have much of an appetite. And he is sooo tired. all. the. time. He had a follow-up appointment on Tuesday, and they put him back on his medicine that he was on before while we wait to see a specialist at Children's.

I had an appointment set up for him on December 1st. That was the very soonest they had available. After I made the appointment, the P.A. from Sean's regular doctor "returned our phone call" about "not being able to control Sean's vomiting." I was like, um, he's in the E.R. right now. I told her about the appointment we already had set up with Children's and that they wouldn't move it up unless our provider called the doctor there and had a consultation. She told me she would get right on it. Well she is the one Jeremy had the follow-up appointment with the next day. We brought some additional symptoms to her attention, combined with some results from work done at the E.R., and she said she had never done a doctor to doctor consult with Children's before, but that she would call them and call us back that afternoon to let us know. Well she did. She also ordered additional lab work for Sean which we got done today.

We got a call today from Seattle Children's and they have scheduled us an appointment for November 3rd at 8:30am. Next week! Yay! So hopefully we will have some more answers then.

Here is something cute and sad all at the same time: Sean was showing me his owie on his arm (where the IV got put in), and he informed me that he "got it from the owie store." Took me a minute. OH, you mean the hospital! We do pay them quite a bit to give us owies.

12 comments:

Shayla said...

So glad to see a post from you today, Amy. Been thinking about you guys a lot. Glad to hear Sean is home and that you got an appointment for next week...you should NOT have to wait until December!

Ben and Alissa said...

I'm so happy that he gets in next week! I hope things go well and your traveling goes fine.

That was very cute and sad what he said about his owie. It made me laugh and have tears in my eyes at the same time.

Heather said...

Glad it's next week and not next month. Hope the labs and what-not give the Drs all the info they need.

AOlson said...

Good to hear. Will he waiting to hear the results.

Kristen said...

Glad there is finally a little bit of "good" news! Hope everything stays calm for the next week and that doctor's appointment hurries here!

Megan said...

hopefully they will have more answers for you next week. it is torture watching your "little man" suffer and waiting and wondering. we were there in aug. and it was not fun.
my thoughts are with you. keep us updated

jana said...

Wow, I was pretty shocked yesterday to get on-line and read the last blog. I haven't stopped thinking about it. I am glad he could come home. I am so glad you got a new date. Please keep us in touch and let us know if there is anything we can do for you. We will keep him in our prayers. Poor kid. We miss you guys.

Anonymous said...

I heart Project Linus and the people who came up with that. That is so sweet that kids can have some happiness in hard times!

tharker said...

I am so glad that Children's pushed up your appointment. I hope that they are able to figure this out quickly and get that sweet little boy feeling better.

It was so good to see you guys last night. Sean did look really tired, but he also looked like he was having a great time! I hope he's feeling better very soon!!

Shelly said...

sorry to hear about your little guy. I hope the doctors can help him soon. we'll keep you in our thoughts and prayers.

Lisa Christine said...

Amy, I am so sorry that I have missed reading these recent posts. I hope that you had a successful appointment at Childrens yesterday.

I'll keep your sweet boy in my thoughts and prayers.

Jess said...

aww, his smile with his blanket and bear is just priceless! Yay for Linus! Hopefully they're all much cleaner than that little stinker was! LOL

So cute: the owie store! We're so happy you got a sooner date! Hooray for miracles in scheduling!
Love, US